Transitioning to Adult Care: Supporting Youth With Special Health Care Needs

The transition from pediatric to adult health care systems can be daunting for anyone, but is especially challenging for young people with intellectual disabilities or other special health care needs. These youth and young adults face numerous challenges while navigating the transition process​, which can lead to lapses in health insurance coverage and reduced access to necessary health services, among other negative outcomes.

This PolicyLab Evidence to Action​ brief summarizes research findings around patient, family and provider perceptions of the transition process, as well as policy recommendations that various stakeholders can use to address these barriers for youth with special health care needs.

Authors:

Steinway C, Gable J, Jan S